Wednesday, January 11, 2012
How Phoenix Tried to Kill Me - Part 10
I lost twenty pounds, and I suspect most of it was in that last week. I was on a liquid diet, sipping chicken broth and ginger ale three times a day. The thinness of my meals wasn’t really that bad, since I didn’t feel like eating anyway, but the weakness that came with it certainly contributed to what came next.
I’m sure I was edging toward clinical depression. My stomach was a mess, I didn’t have any energy, my ankles had gone all Fred Flintstone on me, and I hadn’t been able to take a shower for over a week. A feeling of wilted grossness had settled over me. I was sweating buckets half the time and freezing the other half. Trelina wasn’t able to come see me for a day or two because she and Jasmine were both sick, and I hadn’t seen Jasmine at all since just before my surgery.Two weeks in a hospital, in this day and age, seemed ludicrous to me. I felt like I was never going to get out of there. I knew, intellectually, that I needed to get out of bed more, but all the steps involved in sitting up and making sure my ass wasn’t hanging out of the hospital gown and sorting out my drainage tube and my IV and then carting them along with me wherever I went, would quickly overwhelm those thoughts. I’d wake up in the morning with the intention of doing a lap around acute care every couple of hours, and maybe manage it once or twice in a given day.
Most of all I missed my kid. I called home one night and Trelina put her on the phone for me. She said, “Hi, daddy!” and I simply broke down. I couldn't talk at all, I was crying so hard. I had to hang up and call back when I’d pulled myself together.
That was the kick in my uncovered ass I needed, though. I started getting out of bed more, even when getting out of bed sucked. While I was awake, I made sure to spend more time walking or sitting in a chair than on my back. The improvement wasn’t immediate, and I was probably pushing myself harder than was healthy, but eventually my mood improved, and my health improved with it. The sun came out and the cankles went away.
On November 17, sixteen days after I’d gone to the emergency room, I was given my walking papers. I still had a drainage tube hanging out of my chest, and a pile of instructions and prescriptions an inch thick, but the hard stuff was over.
Tuesday, January 10, 2012
How Phoenix Tried to Kill Me - Part 9
(I'm going to try to be as delicate as I can here, because this stuff isn't the kind of thing you discuss at tea parties. And frankly, it's all a little embarrassing. In the interest of full disclosure, though, I'll soldier on. Bear with me.)
I had been getting pumped full of pain meds for over a week by this point, most of them narcotics. One side effect of taking lots of narcotics is what the pilots in my Air Force days used to call “GI distress”. GI in this case stands for “gastro-intestinal”, so you can probably guess where I'm going with this (or not going, as the case may be). Folks, I didn't do a two-sie for almost a week. My stomach got hard as a rock and I didn't want to eat anything because it literally felt like there was no room left in my belly. Good time for a liquid diet, right? Somebody also brought up the idea of laxatives, but I nixed that right away. Even though I was pretty mobile only a couple of days after my surgery, getting up to go to the bathroom was still a multi-step process, involving coordinated movement of my drainage tube, my IV cart, and my unbalanced body. An urgent call to the bathroom would have ended in disaster.
I got so uncomfortable that one of my doctors finally suggested a nasogastric (NG) tube. This is a small flexible plastic tube that is inserted up a nostril and down through the esophagus and into the stomach. I think the idea was that the tube would suction some of the stuff out of my belly, relieving some of the pressure and maybe even getting things moving again.
An NG tube is not a good time. In fact, I feel pretty comfortable ranking it as one of the most unpleasant experiences of my life. It hurt going in and it continued to hurt the entire time it was in. I mean, I was sort of getting used to hurt by this time, but this was persistent and not dulled by the pain meds. Talking and swallowing were possible, but the throat moving around that segmented tube hurt like the devil - and it was in for 18 hours, at which point I demanded it be removed. The doc who originally suggested it asked me to leave it in for a couple more hours so he could come take a look at it after a surgery, but I vetoed the hell out of that idea. In the end, it barely pulled anything out of my stomach anyway.
Eventually these problems worked themselves out, as these things often do. It wasn't the only post-surgery problem I had, though.
Monday, January 9, 2012
How Phoenix Tried to Kill Me - Part 8
Unfortunately, two weeks is enough time to encounter a couple representatives of the other 0.3%, both of them in the ICU. The first one I don't even remember, but she gave Trelina a hard time early on during my stay in the hospital. The other left me moaning and squirming in pain, not responding to her call button for over an hour, and treating me like a junkie asking for a fix when she finally did respond. Lovely woman.
The rest of my nurses and techs (more than 20 cared for me over the course of my stay) were wonderful. I particularly remember the woman who helped me into the ICU bed after my surgery. She rolled up some blankets and taped them together for me so I could wedge them under my side. This allowed me to sleep sort of on my back without putting any pressure on my incision or jostling my drainage tubes. She called this wedge my buddy, so I decided in an anesthesia-induced fog that it should be named “Tommy”. I slept on Tommy for the rest of my stay.
The surgeon came back to check up on me the day after the surgery. Everything looked fine, but for some reason, he decided the higher drainage tube, the one that was practically in my armpit, should come out. I'm not sure if that was part of the plan all along or not, but he cut the stitch holding the tube in place, then had me roll over onto my uncut side and bear down like I was “having a bowel movement” (his words). At which point he just pulled the tube right out. It hurt, but that was probably just because everything hurt at that point. It was mostly just unpleasant, like I suppose anything sliding out of your body from a new and strange orifice would be.
Then he slapped what must have been five pounds of bandages and tape over my side and bid me adieu. I still had the lower drainage tube sticking out of me, but otherwise I was officially on the mend. After a day or so in the ICU, I was moved back up into a “normal” room in acute care. Now I could finally see the light at the end of the tunnel. I was sure I'd be home by the end of the week.
Sunday, January 8, 2012
How Phoenix Tried to Kill Me - Part 7
I've had surgery before, but those were always of the “this is a useless part of you that's causing trouble and we're going to cut it out” sort. Also known as the “very low risk” sort. Obviously cutting my chest open to drain infected fluid out of my lungs was not in the same ballpark, but everyone assured me it wasn't too risky... while pointing out that I would want to make sure that my living will and... um, dead will(?) were up-to-date.
Honestly, though, I wasn't that worried about the surgery – not because I'm brave like a lion, but because I was so damn thirsty after fasting for 24 hours that “when can I have a drink” trumped “possible death” on my list of mortal concerns. The nurse assured me that I was well-hydrated thanks to the IV, but she knew and I knew that even the tastiest IV doesn't exactly wet a guy's whistle.
My anesthesiologist was the same guy who worked on Trelina when Jasmine was born. I've met him twice now and I still have no idea what his name is, and only the vaguest idea of what he looks like without his surgical mask on, but he did a great job with Trelina, so that also went a long way to setting my mind at ease.
(One interesting note: I'll bet I'm the only dude reading this who's had an epidural. That was part of my anesthesia cocktail that day.)
I was taken down to the staging area and met all the people who would be cutting me open that day. I remember, very dimly, being given the epidural (probably just because of the novelty). And then I went to sleep.
The next thing I remember, I was in the ICU. I had apparently woken up and started talking before that, but (surprise, surprise) I don't remember any of it. My nurse helped me scoot from the gurney into my ICU bed. My left side was a solid block of pain. I didn't even want to look at it or know what had happened there. I just knew it hurt and somebody needed to get me some drugs STAT.
Here's what happened: The surgeon cut a long, swooping incision under my left shoulder blade and around my side to get into my chest. Then, after cleaning up the abscess on my lung and clearing out as much of the infected fluid as he could, he cut two more holes in my side – one above the incision and one below – and threaded drainage tubes the width of cigars into them and between my ribs. Then he stapled the incision closed and sent me to the ICU, tubes and all.
Next came the fun part: recovery.
Thursday, December 29, 2011
How Phoenix Tried to Kill Me - Part 6
Remember how I mentioned that cup that one of the nurses kinda-sorta implied that I might want to spit into, and how I blew her off? After day two of my confinement in the negative pressure room, I asked somebody when I would be free to have other people visit. Trelina was allowed in (I guess they figured if she hadn't caught my cooties yet, she wasn't likely to), but I was thinking in particular of Jasmine. I hadn't seen her in three or four days at that point, and that's just about my limit. The DTs get really ugly from that point on.
So this nurse-or-doctor (they were all sort of blurring together) informed me that getting out of the room depended on them finding out what was in my lungs. And their ability to do that was hanging entirely on me giving them four phlegm samples. What? Nobody told you that?
I had only given them one so far. I had to produce three more and wait for the results before I could get out of that room, and I was already going stir crazy. I learned that day that it is possible for a man to hone his will into the singular goal of producing and expelling phlegm, even when it feels like a Giger Alien is trying to burst out of his chest the entire time. I was focused like a freakin' laser, man. They'd bring me a cup, and I'd be calling (okay, moaning) (okay, whining) for another one before they even left the room.
It was another day and a half before the results came back, saying that I would not kill anybody with my lung fungus.
(Trelina and I just figured the timeline for all this out before I sat down to write this, and I cannot believe that it wasn't longer. It felt like I was stuck in that negative pressure room for more than a week. In reality it was only three or four days.)
So I got to see my kid again. Trelina's sister (who had come up to stay with her and help until I was out of the hospital) brought Jasmine to the room, and she ran around and explored and didn't destroy too much of the machinery keeping daddy alive. I still couldn't get out of bed or interact with her much, but at least I got to see her.
Now the doctors had identified all the invaders in my lungs and knew what they were up against... but they were also coming to realize that the drugs alone weren't going to do the trick. My right lung had cleared up by this point, but after five days of getting firebombed with antibiotics and anti-fungals, my left lung was still teeming with infection. Finally, somebody made the call to send me to the sawbones. It was going to take surgery to get all the crap out of my chest.
Wednesday, December 28, 2011
How Phoenix Tried to Kill Me - Part 5
I'm going to backtrack for a second here, because Trelina reminded me of some stuff that went down that first night in the hospital. And when I say she “reminded” me, I mean she told me about things that I don't remember at all. Whether that was because of the drugs or the infection, I'm not sure. Regardless...
The first night in the hospital, after they'd quarantined me, I was moved out of the little alcove in the ER and into a sealed room approximately the size of a broom closet, also in the ER. I stayed in there for a couple of hours, and then was moved into a negative pressure room in the ICU because (and this is the part where my memory fails me), my breathing and general well-being had declined severely over the course of a couple of hours. Trelina had gone home with Jasmine at this point, and she got a call telling her that I'd been moved and, “Hey, if your husband doesn't start improving, we're going to have to intubate him.”
Meaning they were planning to put a tube down my throat and have a machine do my breathing for me. On second thought, I'm glad I don't remember this crap. A lot of what's stuck with me from the two weeks I spent in the hospital is the aggravation and the sleepless nights and the cabin fever, and it's kind of a blessing that stuff has overshadowed just how hairy it got for a little while there.
At some point, the antibiotics must have started working and my breathing must have improved, because I never did get that tube, and I was eventually moved into another room in the hospital proper – still a negative pressure room, because they still didn't know if I was contagious or not, but at least I had a TV.
(For those that don't know, a negative pressure room allows air to flow in, but not to go back out the same way, so that sickos like yours truly don't infect the rest of the hospital. Wikipedia has a pretty good explanation of how it woks.)
They also weren't sure about how they were going to treat me. There was some talk while I was in the ER of doing surgery to drain the infection out of my lungs, but once the antibiotics and antifungals started kicking in, the constantly changing parade of doctors I was seeing seemed to be in agreement that they could lick this thing solely through the judicious application of drugs. Of course, they weren't sure yet, because they hadn't been able to identify all the different bacteria that had set up shop in my chest cavity. They got around this ignorance by firebombing me with every antibiotic they had... and it worked to the point that I started to get better, but there was still a whole bunch of infection in my chest that just wasn't going away.
Friday, December 23, 2011
How Phoenix Tried to Kill Me - Part 4
A nurse came in at one point and had me breathe some medicated mist through a tube for a few minutes. This was the first respiratory treatment of literally dozens over the next couple of weeks. When we were done, she left me with a plastic cup and mentioned offhandedly that I might want to try to cough some phlegm up into it for analysis. As she didn't make it sound urgent, AND I didn't have to cough, AND making myself cough hurt like a bitch, I took this for a suggestion only and ignored it.
This will be important later.
By that evening, they'd moved me into a sealed room in the hospital proper and started getting serious about filling me with pain-killers and antibiotics. I was only sort of aware of the fact that I was still under quarantine, partly because my head was still fuzzy from the pneumonia, but mostly because the quarantine room wasn't at all different from a normal hospital room. I even, I was told, had a sweet view of the hospital helipad from that room, even though I never saw a helicopter coming or going.
I've often thought that if I ever had to spend any time in the hospital, I would use it to catch up on reading and writing. What better time to do that than when you're forced to lay in bed most of the day anyway, right? The thing I didn't take into consideration was that I would be so uncomfortable that it essentially made those activities (or anything that required more than ninety seconds of concentration), impossible. Fortunately there was a TV on the wall, and even though there wasn't a DVD player attached to it, I did have some basic cable channels. Thus began my two-week Food Network and Travel Channel marathon.
I did eventually spit into that cup the nurse had left me, but when they brought me another one, I just put it on the bedside table and forgot about it. Nobody had made a big deal about it yet, and coughing still hurt, so I just laid in bed for the next day or two, No Reservations flickering on the opposite wall, and waited for the doctors to decide what to do with me.
Wednesday, December 14, 2011
How Phoenix Tried to Kill Me - Part 3
(Also - and I mention this here just to fully illustrate how much the first couple days of November sucked - we found out that night that we couldn't use the upstairs bathroom, the one closest to our bedroom, because every time we flushed, water poured through the kitchen ceiling. We had to go down two floors to the basement if we wanted to take a leak. Welcome home!)
I managed to get in and out of bed on my own during the night, and even to sleep a little bit, but I didn't feel any better in the morning, so we got dressed, dropped Jasmine off at a friend's house, and went to Howard County General.
It was like how I imagine JK Rowling must have felt after finally finding somebody willing to publish her silly little book about kid magicians. The doctors could tell immediately that something was seriously wrong with me. They EKG'ed me and X-rayed me and I got the obligatory IVs, just like in Phoenix, but nobody was shrugging their shoulders and going, "I don't know... muscle pull?" Even the male nurse said something to the effect of, "Dude, I'm not a radiologist, but your lungs look awful!"
I was asked a battery of questions by half a dozen doctors... who obviously weren't comparing notes because they were all asking me the same things. "Where've you been?" "What've you been doing?" "Got any history of lung problems?" "Are you HIV positive?" "Why are you so sick and your wife and kid aren't?"
The radiologist finally made the call: pneumonia in both lungs, along with an abscess on the left lung that looked like it had been there a long time. I saw some of the original CAT scans of my chest cavity, and the left lung was 2/3 full of infection. I have no idea how the doctor in Phoenix missed all that, or if it all just manifested in the three days between ER visits. In any case, I was going to be in the hospital for a while, and Trelina had a lot of calls to make.
Tuesday, December 13, 2011
How Phoenix Tried to Kill Me - Part 2
My memory of those days is foggy, but the real problems started on Tuesday, when we were packing up to fly home.
You remember how in Inception, Leonardo Dicaprio talks about how you never go anywhere in a dream - you're just in one place one moment and in another the next? That's what that Tuesday was like for me, like photographs of a day rather than a single continuous stream of activity.
Click. I'm getting out of bed. Click. I'm in the shower and Trelina's poking her head in to ask if I'm alright. Click. I'm staring at my breakfast, with no desire to eat it. Click. I'm at the airport waiting to board. Click. I'm on the plane.
I was still in a lot of pain, but based on what I found out later, I'm pretty sure I was also a bit oxygen-starved at this point too. Poor Trelina had to take care of me AND Jasmine for that long (thankfully non-stop) trip home. Most of my "awake" periods started with her saying my name sharply because she could see that I was starting to go glassy-eyed.
As with the rest of the day, I don't remember much of the flight home.I'm pretty sure I didn't actually sleep, and I'm certain I was in agony, but the blackouts - or whatever they were - ended up being a blessing. I'm sure if I hadn't been checked out most of the time, that I couldn't have made that flight home. I would have been writhing in the aisle and screaming the whole time.
Getting off of the plane and getting our luggage was a bit of an ordeal, but Trelina handled it without much help from me and got us to our car without incident. She wanted to take me straight to the ER, but it was after midnight and I just wanted to try to sleep. So we went home, deciding that if I didn't feel miraculously better in the morning, the hospital was going to be our first stop.
Monday, December 12, 2011
How Phoenix Tried to Kill Me - Part 1
We arrived on a Thursday, and those first two days went pretty much according to plan. We got settled in at the hotel (which wasn't as centrally located as I'd intended, but still not THAT far from the action) and managed to see my sisters - one of whom had driven over from Texas just for the occasion - and have a nice dinner with a few select friends on Friday night. Jasmine was even sleeping well, despite the fact that that kid NEVER sleeps well unless she's in her own crib.
Saturday, I woke up with some pain in my shoulder. Specifically, it was under my shoulder blade, and it hurt when I took a really deep breath. I'd had this type of pain before, though not this intense, and I decided it was probably just muscle strain from sleeping on a strange bed and pillow. After breakfast, I went to the hotel gym and ran a couple of miles on the treadmill, trying to work out the kink. Afterward, I was exhausted out of all proportion to the effort of the workout, and I laid down for a quick nap. When I woke up, the pain in my shoulder had multiplied and I was now dizzy and nauseated if I tried to be any direction but horizontal.
One of the nice things about being back in your hometown for a visit is you've usually got a vast number of willing babysitters. My sisters took Jasmine while Trelina and I spent most of Saturday in the emergency room. They IV'ed me, X-rayed me, and probably did other horrible things I can't remember (more on that next time) and finally decided that I was right all along - it was a pulled muscle. The doctor on duty suggested I load up on Motrin and maybe ice the shoulder. The pain would take care of itself in a couple of days.
I wasn't feeling up to partying after all this - the pain seemed to be getting more intense by the hour, as did the difficulty with breathing - so we picked up Jasmine and went back to the hotel. We had missed my cousin's party, and caused my sisters to miss it too, and even though that seemed like the absolute nadir of the trip, things would start to suck a lot worse before we got on the plane home.